At the British Research Panel, we receive many questions about who we are, how we work, and, above all, what actually happens with your data. We’ve prepared this article to answer the most frequently asked questions and provide you with the information you need so that you can feel safe and well informed.
Who are we?
We are an online patient community dedicated to connecting patients with medical research. In our context, “medical research” includes:
- Clinical trials aimed at improving health and developing new treatments.
- Observational studies to collect data without assigning treatments
- Surveys and questionnaires that gather patients’ views on treatments or care received, identify unmet needs, and assess symptoms and other aspects of daily life.
- Data collection for research purposes.
- Research on quality of life and the patient experience.
- Outreach and engagement, through newsletters featuring scientific advances and study results, as well as workshops or informative talks about clinical trials and treatments.
Participation is voluntary and you can opt out of research of our community at any time.
Our priority is to make sure that your voice is heard and that you receive all the information you need to make an informed decision.
Data Protection: Your Privacy Is Our Priority
We comply with the General Data Protection Regulation (GDPR) which ensures the safe and responsible use of your information.
For more information, we invite you to take a look at the infographic we’ve prepared about data, why we need it, and how we store it:
Don’t forget that you can always request access, rectification, erasure, restriction, objection, or data portability by writing to us at dpo@jameslindcare.com.
Your data is stored in Denmark and is kept only for as long as strictly necessary.
Clinical Trials: What You Need to Know
We’ve already published a few articles in the past about clinical trials, but here’s a brief overview of key points:
- Participation is 100% voluntary and involves no obligation.
- You can withdraw from the trial at any stage.
- Trials are conducted under strict ethical and medical oversight.
- All studies are reviewed and approved by ethics committees and health authorities.
- Patients are not “lab rats,” but people who contribute to science and to the development of new treatments.
We Are Not a Pharmaceutical Company and We Are Not a Patient Association
We do not sell medicines. We are not a pharmaceutical company, but a community that connects patients with clinical trials in an easy, safe, and accessible way. Our goal is to support medical research while always keeping the patient at the centre.
Additionally, we are not a patient association either. The British Research Panel is simply a community of people who share a common interest (medical research), brought together online to stay informed about research opportunities, exchange experiences, support one another, and share information.
Get Involved
If you’re interested in joining the British Research Panel, simply click this link
Joining our community involves no costs, and there is no commitment.
If you have any questions, you can write to us at info@britishresearchpanel.co.uk.