If you have ever participated in a clinical trial, you probably know that it isn’t a given that you will receive feedback when the trial has ended. We want to change that! New report highligts patients’ need for feedback.
FIND A LINK TO THE REPORT AT THE BUTTOM OF THIS SHORT TEXT
In April James Lind Institute, the founding organization of the British Research Panel, launched a multi-national survey about patient feedback. The goal was to examine the need for patient feedback in clinical trials.
“Our experience is that many of our members are tired of not receiving any form of feedback when they have participated in a clinical trial. Not even an e-mail with the results even though they would very much like to”, says Rasmus Hjorth, Community Manager at the British Research Panel and continues.
“So we set out to test our assumption by making a survey where our members could participate, and to see if our experience was correct.”
Thousands of members from the British Research ended up participating in the survey. And the message was clear. Many of the members, who had participated in a clinical trial had never received any form of feedback even though they would very much like to.
To be exact 98% of the surveyed members wanted to receive some kind of feedback!.
“The fact that so many wanted to receive feedback, was no surprise to us. We are in daily contact with our members and many of them have participated in several trials. So we were just glad that our assumption was confirmed. Now we have to use our report to push for some action.”
In collaboration with the international company TrialScope, James Lind Institute with the participance of members from the British Research Panel, has developed a report which examines the need of patient feedback in clinical trials. You can read the entire report by clicking the link below: